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Life with Parkinson's

By Susan Shinn
Salisbury Post
Some thoughts from members of the Parkinson’s Support Group:

Be aware of your gradual limitations. For example, I can no longer drive a car. I stopped driving when I realized my limitations. I don’t want to put anyone in danger because of my Parkinson’s.

Living with Parkinson’s Disease is a daily challenge as we move more slowly than others in this fast-paced world. We are able to appreciate more fully our daily blessings, as we struggle to exercise muscles to enable walking, dressing, eating, sleeping. Muscle rigidity is of utmost concern with us, and symptoms are embarrassing.
Of utmost benefit is our support group’s monthly meetings, held the first Tuesday of each month at First Presbyterian Church. We know we are not alone as we share common disease issues, research possibilities and hope in the future.

To possess a disease of the 19th century referred to as Parkinson’s Disease means taking medicine that will enable one to squeeze a gas handle pump, to get in and out of bed, to not spill a glass of water, and so on. We all look to the day people like myself can find a cure beyond medication. We also hope for a cure for those like Michael J. Fox who have this disease at its worst. To understand Parkinson’s Disease is to read Michael’s book, “Lucky Man.”
Parkinson’s Disease is like everything else we have faced during our marriage. We are in this together!

Life with Parkinson’s has meant meeting new friends who share PD. This support helps face individual limitations.
I look forward to each meeting as additional new members are added and we learn new information about research and coping methods to live more fully with PD.

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