MOCKSVILLE She blew us kisses.Pressed
her fingers to her mouth and grabbed those kisses and flung them into the air.
And we laughed.
Laughed and blew them back and begged her to do it
again, and she did and we did, over and over again, and it was so wonderful I felt hot
tears behind my eyelids.
Last June when photographer Jon Lakey and I first
went to do a story about 3-year-old Haleigh Sommers and her parents, Tammy DiDominic and
Billy Sommers, the only way her fingers could open was for someone to pry them open.
And she couldnt raise her arms above her head
without help.
But her mother was about to become the first parent
in North Carolina to take a child more than 4,000 miles and 24 hours away to a special
clinic in Poland that offered hope through intense physical therapy in a suit patterned
after a Russian Cosmonauts space suit.
Those first big, bulky suits were designed to help
the Cosmonauts maintain muscle tone in the weightless environment of space.
Now called adeli suits, theyve
been modified to offer help to children with cerebral palsy and hope to parents
like Haleighs who pray that someday their severely crippled daughter will be able to
sit, to stand, to walk like other children and open her hands and blow kisses.
So they raised money to help them pay for a trip
that cost about $9,000 and went in August. And theyre just back now after a second
month of treatment in March. And theyll go again in June and so will 60
Minutes II.
Whether or not that means Ha-leigh will be on
CBSs 60 Minutes II on a Tuesday night, Tammy and Billy dont know. But
Tammys been told a 60 Minutes crew will spend time during the month Haleighs
there documenting the work at the Euromed Clinic on the Baltic coast of Poland.
Surely that says the treatment promises children
with cerebral palsy enough help to attract the attention of one of Americas major
television magazine shows.
And Tammy and Billy are ecstatic with the changes
they already see in Haleigh.
After their first visit, she was a lot stronger,
Tammy says. Control of her head, back, trunk improved tremendously.
She could sit better, hold her arms better, hold herself up better. And doing that makes
her breathe better. And she was a little louder with her voice.
She laughs at what shes just said.
That means she can scream a lot better,
she explains. I didnt see it right at first. People there thought she had
improved a lot, but I couldnt really see it. But after we got home, I started seeing
it. If she slumped over, she could straighten herself up, where before you had to help
straighten her up.
She can hold her arms over her head!
Billy proclaimed with glee when she got home after the second trip.
And she can stand up in a walker, Tammy
adds, and hold herself up, and as long as she remembers to hold on ...
As long as she remembers and they put something
between her knees to keep her legs from automatically scissoring and hold her hips so they
wont slip out of joint, she can walk. Not perfectly. Not without that help.
But its getting there, her mother
says.
Movement with her arms is almost normal now.
Before, she didnt have much range of movement. She does now. She can get herself on
all fours and push until shes sitting and hold herself up on her hands and knees and
oh, so much more.
Its hard to believe the happy little girl
sitting on the hood of her moms car outside the Mocksville Developmental Pre-School,
pretending to drive her dads truck, so excited playing in the bed of the truck that
suddenly we gasp, fearful for an instant that shes going to fall out, is the same
little girl we first met.
Cerebral palsy is permanent damage to the part of
the brain that controls the muscles.
Haleighs brain damage came from being born
three months early and started the world spinning for Tammy and Billy.
They were so happy she lived, Billy says, that they
didnt really realize what the doctors were telling them when they said she had
cerebral palsy.
But the realization came quickly and brought
with it tears enough to drown in. Tammy cried daily for more than two years. She still
cries when their bright little girl wants to do it all, everything any other
child can do but cant.
But it also brought an indelible commitment to do
everything they can to help their daughter have a life as normal as possible.
So she and Billy and both their families stay alert
to every possibility for anything that might help.
Tammys mother, Sally Kaiser of Brownsville,
Pa., heard about the clinic in Poland on television. At first Tammy was skeptical, but she
did the research, found out everything she could about it, talked to dozens of people,
including consultations with Haleighs doctors at Wake Forest University Baptist
Medical Center. They didnt push it but wouldnt say dont go and
filled out forms and evaluations.
Everybody helped them raise money.
And they went.
The second trip was harder than the first.
It was so cold you couldnt get
out, Tammy says. It was always raining or snowing. We got out three days
during the month. The rest of the time it was really terrible, so we were stuck in the
hotel most of the time and had to find things to do.
I knew how long a month was and how hard it
was, and Iwas ready for it but I didnt want to do it again. But I wanted the
results.
And Haleigh did so much better than shed done
the first time.
She didnt have any bad days. She
cooperated. I got to see her walk with a walker with braces on all by herself. Her
hip goes out and looks like its dislocated, because her hips muscles arent
developed.
So they gave us exercises for that. She has
to work on her knees, forward and sideways, and do leg lifts. She walked on the walker
every day. The last week and a half, she was so tired, she had big, black circles under
her eyes.
One day, Tammy says, she just started crying for no
apparent reason.
Whats the matter? her mother
asked her. Haleigh, whats wrong?
Do we live here now? Haleigh wanted to
know.
No, Tammy told her, they didnt live there,
and Haleigh begged to go home.
She wanted to see her daddy.
But the time hadnt come yet, and more had to
be done.
Work in the suit had started as soon as they
arrived. So did electrical acupuncture and the spider exercise, in which bungee cords held
her inside a cage so she could stand by herself. And all of it went on six days a week.
She tolerated it a lot better this
time, her mother says, and could understand the children who couldnt. One
child screamed and cried constantly, despite everyones efforts to comfort him.
But it really hurts him, Haleigh told
her mother.
I know it hurts, Tammy responded,
but they have to stretch the muscles so he can walk.
We dont want to walk anymore because it
hurts, Haleigh said, and Tammy sighs, remembering the moment.
Its hard to explain to an almost but not
quite 4-year-old why she and her friends have to hurt.
Knowing people there this time made it much better,
and they will know even more next time. Warm weather will help, too, and seeing the crowds
that come to a beach town.
And they dont have to worry about money for
this trip. Their income tax return, Tammy says, should give us enough for the third
trip.
But well have to go back to work,
Billy says, to raise a little over $9,000 theyll need for the fourth because
theyre sure shell need a fourth trip.
Tammys mother is already busy with
fund-raisers in Pennsylvania and is planning to sponsor a spaghetti dinner, and Tammy
hopes to have another bake sale and car wash in Mocksville.
We did really good at that.
And theyll keep at it because theyll
need it for the fourth time and the fifth, if doctors still see improvement.
As long as they see improvement, you
go, Tammy says. Weve got to keep going until they cant do anything
for her. Haleighs improved so much. It was six months ago that we went the first
time, and the improvement is amazing. The doctors here are impressed.
But the doctors there are cautious.
Theres nothing to prove what did
it,Tammy says. The suit? The therapy? The people there dont know. It
works, and thats what counts.
That.
And those kisses.